In a news conference, the U.S. National Institutes of Health (NIH) announced an agreement with the family of Henrietta Lacks that will restrict NIH-financed research on the HeLa genome. Two members of Lacks’ family will serve on the HeLa Genome Council, marking the first time tissue donors have had a voice in the process and finally giving the Lacks family a say in how Henrietta’s cells are used. To learn more about this landmark announcement for which author Rebecca Skloot’s book The Immortal Life of Henrietta Lacks has played such a large role, please read the following articles: The HeLa Genome: An Agreement on Privacy and Access from the NIH, Nature Magazine and The New York Times.
August 27, 2013
Lacks’ Family Members to Serve on HeLa Genome Council
Posted by rhacademic under This Just In | Tags: community, ethics, genome, health, HeLa, HeLa cells, Rebecca Skloot, science, The Immortal Life of Henrietta Lacks |Leave a Comment
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